Living to Learn Charter: Supporting students with Life-limiting Illnesses
28 February 2025
The project aims to develop a charter that outlines the support that Liverpool John Moores University provides students faced with life-limiting or palliative diagnoses during their studies, but who wish to continue their studies. The objectives are:
To obtain information about how students and staff are affected;
To conduct consultations with stakeholder groups to better understand the support and provisions needed;
To collaborate with relevant practitioners in the Liverpool City Region.
Requirements
- Over the age of 18
- Identify with one of the following stakeholder groups (or more):
- (1) university staff members who support, or have supported, students with a life-limiting or terminal diagnosis;
- (2) representatives from universities who may have similar policies/charter or are considering developing one; or
- (3) healthcare professionals and charities that support people with life-limiting or terminal illnesses
Keywords
Ethical approval
This study has been approved by the University Research Ethics Committee (UREC) at Liverpool John Moores University (LJMU) on 6 December 2024 (UREC reference: 24/LBS/048).
About the researcher
We are a project team of seven from Liverpool University Hospitals NHS Foundation Trust, Liverpool Business School, LJMU's Diversity & Inclusion Team, School of Nursing and Advanced Practice, and School of Public and Allied Health. We all have lived experiences of one of the four stakeholder groups in our study:
(1) current university students or alumni with lived experiences of receiving a life-limiting or terminal diagnosis during their studies;
(2) university staff members who support, or have supported, such students;
(3) representatives from universities who may have similar policies/charter or are considering developing one; and
(4) healthcare professionals and charities that support people with life-limiting or terminal illnesses
We work voluntarily on this project and aim to change policy and improve the student experience for all learners, particularly this group faced with life-threatening illnesses but who wish to carry on with their studies.
